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My daughter has CENTRAL sleep apnea. They want to cut out her (SMALL!) tonsils & adenoids. Do you recommend?

September 3rd, 2012

They spoke of how horrible it will be — congested nose, pain in throat and ears — all for a 60% chance of it helping. So, she goes through terrible pain for 2 straight weeks, just to find it didn’t help.. Then I forced my child to go thru painful, ineffective SURGERY.
Her numbers were high, and she was listed as SEVERE. They did an MRI of her brain and found nothing. So no idea how it got to be CENTRAL, not so much obstructive. I really need advice.

My daughter (age 9) just had a tonsils and adenoid taken out because of apnea. It was not two weeks of severe pain, she was playing soccer a week later. Yes, she said it hurt but said it wasn’t that bad, as long as she kept with the pain meds. She actually said that she wishes they would grow back so she could get them out again for the benefit of gifts, endless popsicle, and special treatments (ok, maybe she is a ‘bit’ weird). The ear pain is what got her the most, she said the throat wasn’t that bad…but after she took the meds she was fine 15 minutes later.

As for why they would take them out for central sleep apnea when obstruction is not causing it, I have no idea. Do more research on that. But, if taking them out will help even a little then fear not about the horror stories, its not as bad with modern technology.

One Response

  1. My 2 ¢ Says:

    My daughter (age 9) just had a tonsils and adenoid taken out because of apnea. It was not two weeks of severe pain, she was playing soccer a week later. Yes, she said it hurt but said it wasn’t that bad, as long as she kept with the pain meds. She actually said that she wishes they would grow back so she could get them out again for the benefit of gifts, endless popsicle, and special treatments (ok, maybe she is a ‘bit’ weird). The ear pain is what got her the most, she said the throat wasn’t that bad…but after she took the meds she was fine 15 minutes later.

    As for why they would take them out for central sleep apnea when obstruction is not causing it, I have no idea. Do more research on that. But, if taking them out will help even a little then fear not about the horror stories, its not as bad with modern technology.
    References :

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