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Home Mechanical Ventilation CH 02-HMV Considerations

May 20th, 2010

Sheila Kun
Nurse Case Manager Pediatric Pulminology
skun@chla.usc.edu

CCHS
Congenital Central Hypoventilation Syndrome
congenital central hypoventilation syndrome (CCHS) or primary alveolar hypoventilation, is a respiratory disorder that is fatal if untreated. Persons afflicted with Ondine’s curse classically suffer from respiratory arrest during sleep.

Persons who have CCHS get it at birth, or develop it due to severe neurological trauma/damage to the brainstem. The diagnosis may be delayed because of variations in the severity of the manifestations or lack of awareness in the medical community, particularly in milder cases. (Chin, 2006).[1]

This very rare and serious form of central sleep apnea involves an inborn failure of autonomic control of breathing. About 1 in 200,000 live born children have the condition. In 2006, there were only about 200 known cases worldwide. In all cases, episodes of apnea occur in sleep, but in a few patients, at the most severe end of the spectrum, apnea also occurs while awake.

A persons gender or race is not a determining factor when dealing with susceptibility to CCHS. Males and females are both affected equally and a person’s ethnicity, as of this point, has been not been coincided a variable to the disease.

Duration : 0:5:22

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Diaphragm Pacing CH 02-Monique’s Story

April 27th, 2010

Sheila Kun
Nurse Case Manager Pediatric Pulminology
skun@chla.usc.edu

CCHS
Congenital Central Hypoventilation Syndrome
congenital central hypoventilation syndrome (CCHS) or primary alveolar hypoventilation, is a respiratory disorder that is fatal if untreated. Persons afflicted with Ondine’s curse classically suffer from respiratory arrest during sleep.

Persons who have CCHS get it at birth, or develop it due to severe neurological trauma/damage to the brainstem. The diagnosis may be delayed because of variations in the severity of the manifestations or lack of awareness in the medical community, particularly in milder cases. (Chin, 2006).[1]

This very rare and serious form of central sleep apnea involves an inborn failure of autonomic control of breathing. About 1 in 200,000 live born children have the condition. In 2006, there were only about 200 known cases worldwide. In all cases, episodes of apnea occur in sleep, but in a few patients, at the most severe end of the spectrum, apnea also occurs while awake.

A persons gender or race is not a determining factor when dealing with susceptibility to CCHS. Males and females are both affected equally and a person’s ethnicity, as of this point, has been not been coincided a variable to the disease.

Duration : 0:4:15

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Home Mechanical Ventilation CH 01-Introduction

March 22nd, 2010

Sheila Kun
Nurse Case Manager Pediatric Pulminology
skun@chla.usc.edu

CCHS
Congenital Central Hypoventilation Syndrome
congenital central hypoventilation syndrome (CCHS) or primary alveolar hypoventilation, is a respiratory disorder that is fatal if untreated. Persons afflicted with Ondine’s curse classically suffer from respiratory arrest during sleep.

Persons who have CCHS get it at birth, or develop it due to severe neurological trauma/damage to the brainstem. The diagnosis may be delayed because of variations in the severity of the manifestations or lack of awareness in the medical community, particularly in milder cases. (Chin, 2006).[1]

This very rare and serious form of central sleep apnea involves an inborn failure of autonomic control of breathing. About 1 in 200,000 live born children have the condition. In 2006, there were only about 200 known cases worldwide. In all cases, episodes of apnea occur in sleep, but in a few patients, at the most severe end of the spectrum, apnea also occurs while awake.

A persons gender or race is not a determining factor when dealing with susceptibility to CCHS. Males and females are both affected equally and a person’s ethnicity, as of this point, has been not been coincided a variable to the disease.

Duration : 0:4:24

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Diaphragm Pacing CH 04-CCHS Story

March 10th, 2010

Sheila Kun
Nurse Case Manager Pediatric Pulminology
skun@chla.usc.edu

CCHS
Congenital Central Hypoventilation Syndrome
congenital central hypoventilation syndrome (CCHS) or primary alveolar hypoventilation, is a respiratory disorder that is fatal if untreated. Persons afflicted with Ondine’s curse classically suffer from respiratory arrest during sleep.

Persons who have CCHS get it at birth, or develop it due to severe neurological trauma/damage to the brainstem. The diagnosis may be delayed because of variations in the severity of the manifestations or lack of awareness in the medical community, particularly in milder cases. (Chin, 2006).[1]

This very rare and serious form of central sleep apnea involves an inborn failure of autonomic control of breathing. About 1 in 200,000 live born children have the condition. In 2006, there were only about 200 known cases worldwide. In all cases, episodes of apnea occur in sleep, but in a few patients, at the most severe end of the spectrum, apnea also occurs while awake.

A persons gender or race is not a determining factor when dealing with susceptibility to CCHS. Males and females are both affected equally and a person’s ethnicity, as of this point, has been not been coincided a variable to the disease.

Duration : 0:1:41

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Diaphragm Pacing CH 06-Final words

March 7th, 2010

Sheila Kun
Nurse Case Manager Pediatric Pulminology
skun@chla.usc.edu

CCHS
Congenital Central Hypoventilation Syndrome
congenital central hypoventilation syndrome (CCHS) or primary alveolar hypoventilation, is a respiratory disorder that is fatal if untreated. Persons afflicted with Ondine’s curse classically suffer from respiratory arrest during sleep.

Persons who have CCHS get it at birth, or develop it due to severe neurological trauma/damage to the brainstem. The diagnosis may be delayed because of variations in the severity of the manifestations or lack of awareness in the medical community, particularly in milder cases. (Chin, 2006).[1]

This very rare and serious form of central sleep apnea involves an inborn failure of autonomic control of breathing. About 1 in 200,000 live born children have the condition. In 2006, there were only about 200 known cases worldwide. In all cases, episodes of apnea occur in sleep, but in a few patients, at the most severe end of the spectrum, apnea also occurs while awake.

A persons gender or race is not a determining factor when dealing with susceptibility to CCHS. Males and females are both affected equally and a person’s ethnicity, as of this point, has been not been coincided a variable to the disease.

Duration : 0:3:31

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Diaphragm Pacing CH 01-Diaphragm Pacing

March 1st, 2010

Sheila Kun
Nurse Case Manager Pediatric Pulminology
skun@chla.usc.edu


CCHS
Congenital Central Hypoventilation Syndrome
congenital central hypoventilation syndrome (CCHS) or primary alveolar hypoventilation, is a respiratory disorder that is fatal if untreated. Persons afflicted with Ondine’s curse classically suffer from respiratory arrest during sleep.

Persons who have CCHS get it at birth, or develop it due to severe neurological trauma/damage to the brainstem. The diagnosis may be delayed because of variations in the severity of the manifestations or lack of awareness in the medical community, particularly in milder cases. (Chin, 2006).[1]

This very rare and serious form of central sleep apnea involves an inborn failure of autonomic control of breathing. About 1 in 200,000 live born children have the condition. In 2006, there were only about 200 known cases worldwide. In all cases, episodes of apnea occur in sleep, but in a few patients, at the most severe end of the spectrum, apnea also occurs while awake.

A persons gender or race is not a determining factor when dealing with susceptibility to CCHS. Males and females are both affected equally and a person’s ethnicity, as of this point, has been not been coincided a variable to the disease.

Duration : 0:4:18

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Home Mechanical Ventilation CH 06-Clinic Visits

February 26th, 2010

Sheila Kun
Nurse Case Manager Pediatric Pulminology
skun@chla.usc.edu

CCHS
Congenital Central Hypoventilation Syndrome
congenital central hypoventilation syndrome (CCHS) or primary alveolar hypoventilation, is a respiratory disorder that is fatal if untreated. Persons afflicted with Ondine’s curse classically suffer from respiratory arrest during sleep.

Persons who have CCHS get it at birth, or develop it due to severe neurological trauma/damage to the brainstem. The diagnosis may be delayed because of variations in the severity of the manifestations or lack of awareness in the medical community, particularly in milder cases. (Chin, 2006).[1]

This very rare and serious form of central sleep apnea involves an inborn failure of autonomic control of breathing. About 1 in 200,000 live born children have the condition. In 2006, there were only about 200 known cases worldwide. In all cases, episodes of apnea occur in sleep, but in a few patients, at the most severe end of the spectrum, apnea also occurs while awake.

A persons gender or race is not a determining factor when dealing with susceptibility to CCHS. Males and females are both affected equally and a person’s ethnicity, as of this point, has been not been coincided a variable to the disease.

Duration : 0:4:1

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Diaphragm Pacing CH 05-Jim’s Story

February 20th, 2010

Sheila Kun
Nurse Case Manager Pediatric Pulminology
skun@chla.usc.edu

CCHS
Congenital Central Hypoventilation Syndrome
congenital central hypoventilation syndrome (CCHS) or primary alveolar hypoventilation, is a respiratory disorder that is fatal if untreated. Persons afflicted with Ondine’s curse classically suffer from respiratory arrest during sleep.

Persons who have CCHS get it at birth, or develop it due to severe neurological trauma/damage to the brainstem. The diagnosis may be delayed because of variations in the severity of the manifestations or lack of awareness in the medical community, particularly in milder cases. (Chin, 2006).[1]

This very rare and serious form of central sleep apnea involves an inborn failure of autonomic control of breathing. About 1 in 200,000 live born children have the condition. In 2006, there were only about 200 known cases worldwide. In all cases, episodes of apnea occur in sleep, but in a few patients, at the most severe end of the spectrum, apnea also occurs while awake.

A persons gender or race is not a determining factor when dealing with susceptibility to CCHS. Males and females are both affected equally and a person’s ethnicity, as of this point, has been not been coincided a variable to the disease.

Duration : 0:8:14

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Home Mechanical Ventilation CH 04-The Home Stretch

December 19th, 2009

Sheila Kun
Nurse Case Manager Pediatric Pulminology
skun@chla.usc.edu

CCHS
Congenital Central Hypoventilation Syndrome
congenital central hypoventilation syndrome (CCHS) or primary alveolar hypoventilation, is a respiratory disorder that is fatal if untreated. Persons afflicted with Ondine’s curse classically suffer from respiratory arrest during sleep.

Persons who have CCHS get it at birth, or develop it due to severe neurological trauma/damage to the brainstem. The diagnosis may be delayed because of variations in the severity of the manifestations or lack of awareness in the medical community, particularly in milder cases. (Chin, 2006).[1]

This very rare and serious form of central sleep apnea involves an inborn failure of autonomic control of breathing. About 1 in 200,000 live born children have the condition. In 2006, there were only about 200 known cases worldwide. In all cases, episodes of apnea occur in sleep, but in a few patients, at the most severe end of the spectrum, apnea also occurs while awake.

A persons gender or race is not a determining factor when dealing with susceptibility to CCHS. Males and females are both affected equally and a person’s ethnicity, as of this point, has been not been coincided a variable to the disease.

Duration : 0:5:59

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Home Mechanical Ventilation CH 07-Ashley’s Story

November 11th, 2009

Sheila Kun
Nurse Case Manager Pediatric Pulminology
skun@chla.usc.edu

CCHS
Congenital Central Hypoventilation Syndrome
congenital central hypoventilation syndrome (CCHS) or primary alveolar hypoventilation, is a respiratory disorder that is fatal if untreated. Persons afflicted with Ondine’s curse classically suffer from respiratory arrest during sleep.

Persons who have CCHS get it at birth, or develop it due to severe neurological trauma/damage to the brainstem. The diagnosis may be delayed because of variations in the severity of the manifestations or lack of awareness in the medical community, particularly in milder cases. (Chin, 2006).[1]

This very rare and serious form of central sleep apnea involves an inborn failure of autonomic control of breathing. About 1 in 200,000 live born children have the condition. In 2006, there were only about 200 known cases worldwide. In all cases, episodes of apnea occur in sleep, but in a few patients, at the most severe end of the spectrum, apnea also occurs while awake.

A persons gender or race is not a determining factor when dealing with susceptibility to CCHS. Males and females are both affected equally and a person’s ethnicity, as of this point, has been not been coincided a variable to the disease.

Duration : 0:5:44

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