Diaphragm Pacing CH 04-CCHS Story
March 10th, 2010
Sheila Kun
Nurse Case Manager Pediatric Pulminology
skun@chla.usc.edu
CCHS
Congenital Central Hypoventilation Syndrome
congenital central hypoventilation syndrome (CCHS) or primary alveolar hypoventilation, is a respiratory disorder that is fatal if untreated. Persons afflicted with Ondine’s curse classically suffer from respiratory arrest during sleep.
Persons who have CCHS get it at birth, or develop it due to severe neurological trauma/damage to the brainstem. The diagnosis may be delayed because of variations in the severity of the manifestations or lack of awareness in the medical community, particularly in milder cases. (Chin, 2006).[1]
This very rare and serious form of central sleep apnea involves an inborn failure of autonomic control of breathing. About 1 in 200,000 live born children have the condition. In 2006, there were only about 200 known cases worldwide. In all cases, episodes of apnea occur in sleep, but in a few patients, at the most severe end of the spectrum, apnea also occurs while awake.
A persons gender or race is not a determining factor when dealing with susceptibility to CCHS. Males and females are both affected equally and a person’s ethnicity, as of this point, has been not been coincided a variable to the disease.
Duration : 0:1:41

http://cpap.apnea-treatment.com. If you think you have sleep apnea but are unsure, then watch this video. Dr. Jonathan Greenburg outlines the symptoms of sleep apnea.
Nick sleeping – trying to prove he has sleep apnea
Sheila Kun
http://www.cpap.com — OptiLife CPAP Mask – Fitting Tips
Recognized as one of the very best in the United States, Fusion Sleep offers the only Complete Sleep Medicine Program located right here in Atlanta. 
http://www.cpap.com — FlexiFit HC432 Full Face CPAP Mask – Cleaning
Independent at Home presents an educational video about treating Sleep Apnea with CPAP & BiPAP machines. Up to twenty million Americans suffer from sleep apnea to some degree. This video offers treatments and solutions for sleep apnea with the use of CPAP machines and other devices.