Diaphragm Pacing CH 06-Final words
March 7th, 2010
Sheila Kun
Nurse Case Manager Pediatric Pulminology
skun@chla.usc.edu
CCHS
Congenital Central Hypoventilation Syndrome
congenital central hypoventilation syndrome (CCHS) or primary alveolar hypoventilation, is a respiratory disorder that is fatal if untreated. Persons afflicted with Ondine’s curse classically suffer from respiratory arrest during sleep.
Persons who have CCHS get it at birth, or develop it due to severe neurological trauma/damage to the brainstem. The diagnosis may be delayed because of variations in the severity of the manifestations or lack of awareness in the medical community, particularly in milder cases. (Chin, 2006).[1]
This very rare and serious form of central sleep apnea involves an inborn failure of autonomic control of breathing. About 1 in 200,000 live born children have the condition. In 2006, there were only about 200 known cases worldwide. In all cases, episodes of apnea occur in sleep, but in a few patients, at the most severe end of the spectrum, apnea also occurs while awake.
A persons gender or race is not a determining factor when dealing with susceptibility to CCHS. Males and females are both affected equally and a person’s ethnicity, as of this point, has been not been coincided a variable to the disease.
Duration : 0:3:31

Independent at Home presents an educational video about treating Sleep Apnea with CPAP & BiPAP machines. Up to twenty million Americans suffer from sleep apnea to some degree. This video offers treatments and solutions for sleep apnea with the use of CPAP machines and other devices.
Sheila Kun
Sheila Kun
Take the Sleep Apnea Test Today
Sheila Kun
Learn how to Clean and Maintain your new SleepWeaver Soft Cloth CPAP mask from http://www.sleepweaver.com. Swivel Replacement, Washing your mask, Disinfection and Drying your Mask. Clinical Disinfection Directions Also Included.
Dr. Richard E. Klein from the Michigan Head & Neck Institute – OSA, the most common type of sleep apnea, occurs when air cannot flow into or out of the persons nose or mouth, although efforts to breathe continue. In a given night, the number of involuntary breathing pauses or apneic events may be as high as 20 to 60 or more per hour. Snoring and choking between apneic events is common, although not everyone who snores has OSA.
Sheila Kun
Learn how to fit and adjust your new SleepWeaver Soft Cloth CPAP Mask Video or visit http://www.sleepweaver.com